Writing Away My Sadness....


Showing Tag: "huntingtons" (Show all posts)

Fighting With Huntington's

Posted by Jordan on Thursday, June 16, 2011,
My sister and I are not speaking.  I am angry, sad and pissed.  I feel sad and I know she does as well.  When I fight with her though, its not her.  We have never really fought.  She has always insprired in me in so many ways.  I know that when we fight now, I am fighting her disease.  She has never been disloyal, heartless or unforgiving.  But now she is somthing other than what I used to know.  She is leaving me just like my mom.  Right now I feel like she doesnt care about anything other t...
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Holidays with Huntingtons...

Posted by Jordan on Tuesday, January 4, 2011,
Welcome 2011.........
  When the holidays come around things become more intense, such as making sure we are all together and that the holidays will never be forgotten because the one thing in the back of most of our minds, "Is this the last Christmas."  I dont care who you are but when you have someone you love with Huntingtons you often find yourself wondering if its the last anything with this person.  I found my self really sad on Thanksgiving.  My sister, who has Huntingons along with my ...
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Held Back

Posted by Jordan on Wednesday, August 11, 2010,
I feel held back from time to time.  My husband talks about when we get old but the bottom line is I dont know if I am going to get old with him.  I want to get tested but I am just not ready.  I dont want to have to focus on KNOWING that I do have it when I have three young babies.  I really need to keep my head in the game and take care of them.  But I dont like those late night talks with my husband that make me wonder will I be there with you when you grow old and will I be there to watch...
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I am a mother of three and a wife to a wonderful husband. I dont want to let on to, to much information. But I do want to tell you my story and story around me.

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