Writing Away My Sadness....


Fighting With Huntington's

June 16, 2011
My sister and I are not speaking.  I am angry, sad and pissed.  I feel sad and I know she does as well.  When I fight with her though, its not her.  We have never really fought.  She has always insprired in me in so many ways.  I know that when we fight now, I am fighting her disease.  She has never been disloyal, heartless or unforgiving.  But now she is somthing other than what I used to know.  She is leaving me just like my mom.  Right now I feel like she doesnt care about anything other than how she feels.  I feel like she cares less and less about the good things in life.  I know that its not her though.  I feel as though me speaking to her will make it go away.  It wont.  In true hinsight she is losing herself and she cant control it.  She has to watch my mom take the steps into the darkest part of the disease and watching this is making her angry because this is what her future holds.  She is watching out what will happen to her.  I cant imagine when looking out my mother I would be looking into a fun house mirror and see myself.  I dont know if I will have it but my sister does and all she needs now more than ever is my shoulder.  I am scared though.  Scared to admit the truth of my future with out her or my mom in it.  I cant imagine not being able to call my sister and talk to her about the daily gossip or to call her in tears because I had a bad day.  This will not go away and I have to admit that to myself and remeber that as of right now, I am not fighting with my sister, I am fighting the disease and trying to hold it back.  Being true to myself about our hand of cards we were dealt will help to move on with her and go through this process of decay.  I am burned inside and out, I am falling asleep with my thoughts and I wake up even more angry.  I dont know where to look or who to reach to.  I am lost but my sister and mom are more lost.
 

Holidays with Huntingtons...

January 4, 2011
Welcome 2011.........
  When the holidays come around things become more intense, such as making sure we are all together and that the holidays will never be forgotten because the one thing in the back of most of our minds, "Is this the last Christmas."  I dont care who you are but when you have someone you love with Huntingtons you often find yourself wondering if its the last anything with this person.  I found my self really sad on Thanksgiving.  My sister, who has Huntingons along with my ...
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MARY TREES

October 24, 2010
I would like to thank my cousin Mary for helping me with the pictures of this website.  Mary was diagnosed I believe last year.  She should be an insperation to everyone.  She fights on through walks, the beach, her puppies and everytime I see a post on her Facebook she is enjoying her family.  I love how great she seems to want to make of her time.  I live a bunch of states away from her but if I can see her fighting from here she must be.  Anyway Mary thank you for sending those photos and ...
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Blue Ribbon maybe?

October 13, 2010
Had my mom over for a couple days being I have not had much time with work, school and kids.  We had a very nice time. 
I am glad that she is still able to enjoy a beer :-)  She asked if we could cook steaks because the home does not.  Well we found out real fast why that is.  She CHOKED!!  My husband had to give her the hymlech!!  I was a freaked out puppy!  I am
aware now that I am going to be a wreck when my mother passes.  I knew to some exctente that I would be but just her being that cl...
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Happy?

August 19, 2010

I dont want anyone who reads my blog to misunderstand me.  I know that I may seem to be an unhappy and dark person, but that is just when I am talking about the way I feel about this diease.  I dont think there is anything happy to talk about when it comes to HD!  But I want to tell a little about who I really am.  I am a mother of three awsome kids and a wife to the most wonderful and caring husband in the world.  I love to laugh, sing and cry when its needed.  I love to watch my kids and se...


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Held Back

August 11, 2010
I feel held back from time to time.  My husband talks about when we get old but the bottom line is I dont know if I am going to get old with him.  I want to get tested but I am just not ready.  I dont want to have to focus on KNOWING that I do have it when I have three young babies.  I really need to keep my head in the game and take care of them.  But I dont like those late night talks with my husband that make me wonder will I be there with you when you grow old and will I be there to watch...
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Disabilaty

August 2, 2010
So I just recieved papers for my sister who is trying to get diability.  Since I am a close person to her I have to fill out forms as I did for my mom.  I keep wondering how many more of these I will have to fill out in my family.  It really hit hard today.  Cried for a long time.  Was very upset.  Feel alone.  I know that they are dealing with this and we are going through this but getting things like this make days a little harder then others.
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Un Noticed!

August 1, 2010

The happenings of my life right now are very sweet but also really bitter.  I am working, going to college and raising three kids.  I love my life I dont want anyone to get it wrong or anything.  I love my family and everyone around me.  But right now I am dealing with a storm within myself.  I dont know how to win the war.  And to top things off I am not speaking with my sister.  I know she is dealing with alot.  But I feel as though my feelings are forgotten.  I am in the stands watching th...


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Selfish

July 30, 2010
Having a loved one with this disease makes you feel helpless and afraid but another feeling that comes to mind is selfish.  For me I feel selfish sometimes for feeling angry about it when I am not the one with it.  But I am also going through this as well as my loved ones.  I may not be going through the same things they are experiencing but I am going through alot of bad emotions.  Sometimes I feel forgotten because I am healthy and all the attention is on the ones that have it.  Or that it ...
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Comment?

July 27, 2010
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About Me


I am a mother of three and a wife to a wonderful husband. I dont want to let on to, to much information. But I do want to tell you my story and story around me.

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